Patient Registry IT Consultant
Photo of Marcel Heidemann
IT Consultant and Developer
for Patient Registries
I am a senior developer and technical consultant specializing in patient registries. I have supported the launch, technical operation and continuous improvement of over 15 national and global neuromuscular registries based at leading research centers including LMU Munich and Newcastle University. As part of TREAT-NMD, I contribute expertise in data modeling, harmonization and data management to an international registry network. With over two decades of experience in the neuromuscular field, I am able to provide technical solutions tailored to the unique challenges of collecting high-quality data from patients with rare diseases.

Partners

LMU Klinikum, Munich
John Walton Muscular Dystrophy Research Centre, Newcastle
TREAT-NMD Neuromuscular Network
Immanuel Klinik Rüdersdorf, University Hospital of the Brandenburg Medical School Theodor Fontane
Patient Registry IT Consultant